Multiple Osteochondromas (MO) previously known as Multiple Hereditary Exostoses (MHE) or Hereditary Multiple Exostoses
(HME) is relatively rare disorder associated with formation of bone outgrowths at multiple sites in the skeleton. The
presence of dental problems has been communicated to us by some MO patients, but as far as we know, there are no
medical data published that would confirm this observation. As problems with teeth might severely affect not only the self
esteem but also general health, hence we recognize that dental health in MO patients needs to be investigated.
With the support and collaboration of Pancras Hogendoorn, M.D., Ph.D. and Malgorzata Wiweger, Ph.D. from the Leiden
University Medical Center(LUMC) The Netherlands a questionnaire has been designed that could be answered without need
of seeing any dentist or other medical professionals. We hope that this survey will contribute to better understanding of
the MO disorder and improve the quality of care given to MO patients.
All Support groups and individuals who suffer from MO are invited to participate in this study by answering the
questionnaire. In order to reach as many MO patients as possible and still be able to manage the project researchers from
LUMC decided to place an on-line survey on the MHE Research Foundation website located on an encrypted secure
webpage. All responses will be collected by Mrs. Sarah Ziegler (Vice President of the MHE Research Foundation, National
Director of Research & Coordinator of Clinical Information, Executive Director of the National MHE Research Registry),
encoded in order to keep anonymity /confidentiality of the respondents and forwarded to the team of researchers at the
LUMC for analyses. The research team aims to make the results publicly available in a form of an article published in a
scientific journal, so basic researchers; medical professionals and people affected by MO will be able to read the results.
As a quick reference a picture of the teeth has been placed on this page.
This questionnaire is encrypted with the following as required by regulations, SSL 3.0, RC4 with 128 bit encryption (High);
RSA with 1024 bit exchange. To view encryption lock icon or if you have any trouble viewing the questionnaire.
Please Click Here
As a quick reference a picture of the teeth has been placed on this page.
(HME) is relatively rare disorder associated with formation of bone outgrowths at multiple sites in the skeleton. The
presence of dental problems has been communicated to us by some MO patients, but as far as we know, there are no
medical data published that would confirm this observation. As problems with teeth might severely affect not only the self
esteem but also general health, hence we recognize that dental health in MO patients needs to be investigated.
With the support and collaboration of Pancras Hogendoorn, M.D., Ph.D. and Malgorzata Wiweger, Ph.D. from the Leiden
University Medical Center(LUMC) The Netherlands a questionnaire has been designed that could be answered without need
of seeing any dentist or other medical professionals. We hope that this survey will contribute to better understanding of
the MO disorder and improve the quality of care given to MO patients.
All Support groups and individuals who suffer from MO are invited to participate in this study by answering the
questionnaire. In order to reach as many MO patients as possible and still be able to manage the project researchers from
LUMC decided to place an on-line survey on the MHE Research Foundation website located on an encrypted secure
webpage. All responses will be collected by Mrs. Sarah Ziegler (Vice President of the MHE Research Foundation, National
Director of Research & Coordinator of Clinical Information, Executive Director of the National MHE Research Registry),
encoded in order to keep anonymity /confidentiality of the respondents and forwarded to the team of researchers at the
LUMC for analyses. The research team aims to make the results publicly available in a form of an article published in a
scientific journal, so basic researchers; medical professionals and people affected by MO will be able to read the results.
As a quick reference a picture of the teeth has been placed on this page.
This questionnaire is encrypted with the following as required by regulations, SSL 3.0, RC4 with 128 bit encryption (High);
RSA with 1024 bit exchange. To view encryption lock icon or if you have any trouble viewing the questionnaire.
Please Click Here
As a quick reference a picture of the teeth has been placed on this page.
| Multiple Osteochondroma Dental Questionnaire |
If you would directly contact researchers Pancras Hogendoorn, M.D., Ph.D. and or Malgorzata Wiweger, Ph.D.
please Click Here
please Click Here
If you prefer to fill out this questionnaire using a PDF file that you can type directly into and then email as an attachment or
postal mail to Sarah Ziegler Click Here
postal mail to Sarah Ziegler Click Here