Jacqueline Hecht, PH.D.
Hereditary Multiple Exostosis and Pain
Abstract 2005 MHE Conference
Jacqueline Hecht1 and Sandra Darilek2
1Department of Pediatrics, University of Texas Houston Medical Center
2Genetic Counselor Baylor College of Medicine
This study was undertaken to characterize pain in individuals with hereditary multiple exostosis (HME). Two hundred
ninety-three patients with HME completed a questionnaire designed to assess pain as well as its impact on their life. Eighty-four
percent of participants reported having pain, indicating that pain is a real problem in HME. Of those with pain, 55.1% had
generalized pain.
Two factors were found to be associated with pain outcome: HME-related complications and surgery. Individuals who had
HME-related complications were five times more likely to have pain, while those who had surgery were 3.8 times more likely to
have pain.
No differences were found between males and females with respect to pain, surgery, or HME-related complications.
The results of this study indicate that the number of individuals with HME who have pain has been underestimated and that pain
is a problem that must be addressed when caring for individuals with HME.
Abstract 2005 MHE Conference
Jacqueline Hecht1 and Sandra Darilek2
1Department of Pediatrics, University of Texas Houston Medical Center
2Genetic Counselor Baylor College of Medicine
This study was undertaken to characterize pain in individuals with hereditary multiple exostosis (HME). Two hundred
ninety-three patients with HME completed a questionnaire designed to assess pain as well as its impact on their life. Eighty-four
percent of participants reported having pain, indicating that pain is a real problem in HME. Of those with pain, 55.1% had
generalized pain.
Two factors were found to be associated with pain outcome: HME-related complications and surgery. Individuals who had
HME-related complications were five times more likely to have pain, while those who had surgery were 3.8 times more likely to
have pain.
No differences were found between males and females with respect to pain, surgery, or HME-related complications.
The results of this study indicate that the number of individuals with HME who have pain has been underestimated and that pain
is a problem that must be addressed when caring for individuals with HME.
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Research authored by Dr. Hecht
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List of Publications via PubMed
(NIH National Library of Medicine)
List of Publications via PubMed
(NIH National Library of Medicine)
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Click here to verify.# HON Conduct 282463 and is the patient support link on the US Government Genetics Home Reference (http://ghr.nlm.nih.gov)
website, also linked for Patient Information on The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences a free online service providing access to the very best Web resources for education and research located in the UK
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