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| computer, go to VIEW and click on READ OUT LOUD, sit back and listen to them read to you. | ||
| There are tables located in the Orthopaedic, Genetic and Pain sections with links to guide information, these are the same | |
| links located in the website tool bar. This was done to insure easy use of our website. Once you have a chance to review the information located on this website, return visitors may simply want to check the announcement page for a complete listing of all new links and information that has been added to our website | ||
| Our goal is to make this website as user friendly as possible. |
Privacy policy:
We are committed to the protection of the privacy of our website users and visitors. Our website systems do not automatically
considered confidential (Online communication forms, email, on line submission, hard copy correspondence, phone
conversations) and will not be released to anyone without your written consent.
| If you register with The MHE National Research Registry, once you agree with the terms as stated within the registry, all | |
| forms of communication associated with this registry, only the National Director of Research will have access to your contact and personal information contained within this data base. Principle Researchers upon your consent be provided your contact information and will be clearly stated within each research project as some research projects require contact information and others do not. All Principle Researchers have signed certificates of cooperation with MHERF as has MHERF's National Director of Research. |
However, in order to reply to any MHERF generial inquiries and requests, you agree that:
1. You must provide the MHE Research Foundation with certain contact information such as name, address, telephone
number and e-mail address.
2. When you provide MHERF with your contact information, this information will be placed into our secure database apart
from the MHE Research Registry. Only the 5 Board of Directors of MHERF may access your contact information. All online
submission forms use (SSL 3.0, RC4 with 128 bit encryption (High); RSA with 1024 bit exchange) Internet Security.
3. We may use this information to reply to your inquiries and used for the sole purpose of keeping you informed on the
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Foundation other than a Researcher or Medical Professional will always end with @mheresearchfoundation.org If you receive
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security for online submission is (SSL 3.0, RC4 with 128 bit encryption (High); RSA with 1024 bit exchange) as required by
HIPPA.
5. All hard copy (paper) confidential information, is located in a locked fire retardant safe.
If you have any questions about the privacy policies of this foundation's please email or call the toll free phone number and we
will be happy to answer any questions you may have concerning this foundation.
Toll Free Phone number: 1-561-315-9149
Email Board of Directors
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| MHERF Privacy Policy & Terms of use & User key information |
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If you are Physician or Genetic Counselor would a second opinion or assistance related to care, email Sarah Ziegler directly or
sign into the physician registry.
At that point the MHE Research Foundation will put the Physician/Genetic Counselor directly in contact with a Physician or
Geneticists that could help sort out the medical issue directly. This assistance is offered to medical professional only.
If you are a patient wanting a second opinion please use the doctor directories located on this website, if after you still need
assistance contact Sarah Ziegler.
sign into the physician registry.
At that point the MHE Research Foundation will put the Physician/Genetic Counselor directly in contact with a Physician or
Geneticists that could help sort out the medical issue directly. This assistance is offered to medical professional only.
If you are a patient wanting a second opinion please use the doctor directories located on this website, if after you still need
assistance contact Sarah Ziegler.
Written consent must be obtained to attach web pages or the files attached to this website, please email the webmaster. Email the webmaster: webmaster@mheresearchfoundation.org Materials on this website are protected by copyright Copyright © 2014 The MHE Research Foundation Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care. The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine. In all cases we recommend that you consult your own physician regarding any course of treatment or medicine. This web page was updated last on 3/16/14, 12:0O pm Eastern time |
The MHE Research Foundation, we comply with the HONcode standard for health trust worthy information: By the Health On the Net Foundation.
Click here to verify.# HON Conduct 282463 and is the patient support link on the US Government Genetics Home Reference (http://ghr.nlm.nih.gov)
website, also linked for Patient Information on The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences a free online service providing access to the very best Web resources for education and research located in the UK
Click here to verify.# HON Conduct 282463 and is the patient support link on the US Government Genetics Home Reference (http://ghr.nlm.nih.gov)
website, also linked for Patient Information on The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences a free online service providing access to the very best Web resources for education and research located in the UK
| This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation. All online submission forms use (SSL AES 256 bit encryption (High); RSA 1024 bit exchange) Protocol with Privacy protection. Our goal is to make this website as safe and user friendly as possible. |
| The MHE Research Foundation is a participating member organization of the United States Bone and Joint Decade/Initiative, (USBJD/I) & the USBJD/I Rare Bone Disease Patient Network NBHA National Bone Health Alliance |
The MHE Research Foundation is proud to be an affiliate of the Society For Glycobiology
