American Academy of Orthopaedic Surgeons Doctor Directory

The Pediatric Orthopaedic Society of North America Doctor Directory

Musculoskeletal Tumor Society Orthopaedic Oncologist Directory

Shriners provides the highest quality care to children with neuromusculoskeletal conditions,  
within a compassionate, family centered and collaborative care environment. This mission is
carried out without cost to the patient or family, and without regard to race, color, creed, sex.

The Limb Lengthening and Reconstruction Society Doctor Directory
Many people with a health related conditions, first research a health care provider /  physician and then look to see the
insurance plan include theses physicians and what best  fits there health care needs the best.

When trying to locate a Orthopaedic physician, you may want to ask how many cases of this disorder have he/she seen in there
years of medical practice, this is a rare disorder and the more experience the better in most cases.
Orthopaedic Phyisican Directories to located a doctor
"APTA" American Physical Therapy Association (great resource to find a Physical Therapist)
School Needs Check List and other information needed for an IEP, School Accommodations
(IEP), Disabilities Education Act (IDEA)
Resource Section~Insurance Information, SSI, Disability,Housing during hospital stay.....
Be notified of page updates
it's private

Home page
Wings of HOPE as we REACH
for the CURE to
Multiple Hereditary Exostoses Syndrome
Multiple Osteochondroma Syndrome
If you are Physician  or Genetic Counselor would a second opinion or assistance related to care, email Sarah Ziegler directly or
sign into the
physician registry.

At that point the MHE Research Foundation will put the Physician/Genetic Counselor directly in contact with a Physician or
Geneticists that could help sort out the medical issue directly. This assistance is offered to medical professional only.

If you are a patient wanting a second opinion please use the doctor directories located on this website, if after you still need
assistance contact Sarah Ziegler.

Written consent must be obtained to attach web pages or the files attached to this website, please email the webmaster.

Email the webmaster:
Materials on this website are protected by copyright
Copyright © 2014 The MHE Research Foundation

Disclaimer:   While many find the information useful, it is in no way a substitute for professional medical care.
The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine.
In all cases we recommend that you consult your own physician regarding any course of treatment or medicine.

This web page was updated last on 5/26/16, 12:0O pm Eastern time
The MHE Research Foundation, we comply with the HONcode standard for health trust worthy information: By the Health On the Net Foundation.      
here to verify.# HON Conduct 282463  and is the patient support link on the US Government Genetics Home Reference (
website, also linked for Patient Information on
The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences  a free online service  providing access to the very best Web resources for education and research located in the  UK
This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation.

All online submission forms use (SSL AES 256 bit encryption (High); RSA 1024 bit exchange) Protocol with
Privacy protection.
Our goal is to make this website as safe and user friendly as possible.
The MHE Research Foundation is a participating member organization of the
United States Bone and Joint Decade/Initiative,  (USBJD/I) & the  USBJD/I Rare Bone Disease Patient Network NBHA  National Bone Health Alliance
number of users on this website page now :

The MHE Research Foundation is proud to be an affiliate of the Society For Glycobiology
The MHE Research Foundationis proud to be a partnering society with ASMB  / MSTS  / CTOS
MHE / MO/ HME call for action has been heard and here are the results.
The MHE (Multiple Hereditary Exostoses) Center at the Paley Institute is the first center
of its kind: an all inclusive, comprehensive treatment center for MHE. Multiple World
Renowned Specialists in every Orthopedic area of MHE. Continuity of care for both
Children and Adults, all at the same time, quality of life game plan for you and your family.
The MHE Research Foundation would like to thank Dr. Paley, Dr. Feldman, Dr. Robbins,
Dr. Wesstein and the entire staff at the Paley Institute for making dreams come true.