|INITIATIVE PUT INTO ACTION
SETTING THE BENCH MARK FOR RARE DISEASE DAY!
The MHE Research Foundations/Sanford-Burnham
hosted the inaugural Rare Disease Symposium held on Feb 26th, 2010
a unique format in which patients and their families were given a voice
and the scientists were there to listen.
Symposium program link / All video presentations from the conference link
Sanford~Burnham New Letter article link
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Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care.
The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine.
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This web page was updated last on 12/19/10, 4:0O pm Eastern time
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|The MHE Research Foundation is a participating member organization of the
United States Bone and Joint Decade, (USBJD) & the USBJD Rare Bone Disease Patient Network