|INITIATIVE PUT INTO ACTION
SETTING THE BENCH MARK FOR RARE DISEASE DAY!
The MHE Research Foundations/Sanford-Burnham
hosted the inaugural Rare Disease Symposium held on Feb 26th, 2010
a unique format in which patients and their families were given a voice
and the scientists were there to listen.
Symposium program link / All video presentations from the conference link
Sanford~Burnham New Letter article link
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Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care.
The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine.
In all cases we recommend that you consult your own physician regarding any course of treatment or medicine.
This web page was updated last on 12/19/10, 4:0O pm Eastern time
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|The MHE Research Foundation is a participating member organization of the
United States Bone and Joint Decade, (USBJD) & the USBJD Rare Bone Disease Patient Network