People with MHE / MO / HME need all the support they can get during times they require surgery and with their recovery. Care
Bridge is where you can keep loved ones informed during difficult times and they can post get well wishes to you or your child.

Get well wishes can lift you and or your child's spirits during these difficult times. This is also a great activity that your child can
help you with before their surgery takes place. Or put up a page for your child and surprise them during their recovery with all
the get well wishes. Ask your child's grandparents, friends and relatives to post a message to your child every day, this gives
your child something to look forward to during their recovery.

http://caringbridge.org/
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Wings of HOPE as we REACH
for the CURE to
Multiple Hereditary Exostoses Syndrome
Multiple Osteochondroma Syndrome
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Please be aware that if you would like to participate in any research project that our foundation is an active part in you will still
need to fill out the online Research "PATIENT" Registry Form, as this is required by Human Subjects Regulations for Research.
The research participation process has not changed, if you have registered in this registry you DO NOT have to register again.
The Connection Corner Family Support
Subscribe to The MHE Research Foundationís Connection Corner Online Google Support Group.
Enter Your Email To Join This Group:
You do not need to feel alone, you can share your experiences with others. Please consider joining our group.
To view this group Click Here
Help the MHE Research Foundation Connection Corner expand this section of our website by sharing your families story. We hope to have this
section expanded starting June 1, 2010

Please email us your story and pictures to
FamilyStories@MHEResearchFoundation.org
The MHE Research Foundation would like to acknowledge KIDS ZONE is brought to you by the
Arnold Palmer Hospital for Children located in Orlando Florida
You can now facebook with the MHE Research Foundations and the Foundations Vice President
Sarah Ziegler and
Marjorie (Max) Reynolds. Click the Facebook logos
The MHE Research Foundation
We are pleased to welcome Marjorie (Max) Reynolds as the new Patient/Family Care Coordinator.
If you are in the need of obtaining an Orthopaedic Surgeon and family support, please feel free to contact Max at anytime at
maxreynoldsmhe@gmail.com or call 971-274-5935. As part of Max new role within the Foundation she is Director of the MHE / MO / HME
Google support group and Facebook etc and is assistant to Vice President Sarah Ziegler as Coordinator Clinical and Research Information.












































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Disclaimer:   While many find the information useful, it is in no way a substitute for professional medical care.
The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine.
In all cases we recommend that you consult your own physician regarding any course of treatment or medicine.
 

This web page was updated last on 3/16/14, 12:0O pm Eastern time
The MHE Research Foundation, we comply with the HONcode standard for health trust worthy information: By the Health On the Net Foundation.      
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here to verify.# HON Conduct 282463  and is the patient support link on the US Government Genetics Home Reference (http://ghr.nlm.nih.gov)
website, also linked for Patient Information on
The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences  a free online service  providing access to the very best Web resources for education and research located in the  UK
This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation.

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