| There is NO treatment / cure for MHE now, but research is starting to make great progress into understanding the etiology of MHE. Researchers are just at the point where together with the support of this event and others, they can make major inroads toward better diagnosis, treatment and a cure possible. |
| During this banquet "The Humanitarian Scientific Achievement Award" was presented to Dror Paley, MD, FRCSC |
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Born in Tel Aviv, Israel in 1956, he moved to Canada as a child. Dr. Paley completed his undergraduate studies and medical school, at the
University of Toronto graduating in 1979. After a surgical internship at Johns Hopkins Hospital in Baltimore, he completed his
Orthopedic Residency and FRCSC at the University of Toronto in 1985. He did a fellowship in hand and trauma surgery at Sunnybrook
Hospital in Toronto, another fellowship in pediatric orthopedics at the Hospital for Sick Children in Toronto and a seven month travelling
fellowship to Russia and Italy to study with Ilizarov, Debastiani, Monticelli and Spinelli, and Cattaneo and Catagni. In 1987 he
introduced the Ilizarov method to Canada and the United States. Dr. Paley started his practice at the University of Maryland in 1987 and
became a full professor by the age of 39. He left the University in 2001 to Head the newly constructed Rubin Institute of Advanced
Orthopedics at Sinai Hospital in Baltimore. In 2009, he moved to West Palm Beach, Florida where he currently is the director of the Paley
Advanced Limb Lengthening Institute, on the campus of St. Mary’s Medical Center. He holds an academic position as adjunct Professor at
the University of Toronto and is on the faculty of the Hospital for Sick Children since 2010. Dr. Paley also has an appointment as
Professor, University of Vermont School of Medicine since 2011. At the Paley Institute he supervises a fellowship program for US and
International Orthopedic surgeons.
Dr. Paley is best known for his landmark research in the field of limb lengthening and deformity correction. His 800 page textbook
Principles of Deformity Correction is considered the Bible of deformity correction surgery. It was first published in 2001 and has been
republished in 2005 by Springer. Dr. Paley has also published 4 other books. He is also the author of 47 book chapters, 129 peer
reviewed journal articles, and 54 video productions. He has presented over 1000 lectures at International Orthopaedic Society
conferences and over 900 lectures at North American Society conferences. He has served on The MHE Research Foundation Scientific and
Medical Advisory Board since its inception and presented lectures on all aspects of MHE treatment for both children and adults. He has
also served as as speaker and Orthopaedic Chair during the MHE Research conferences. He is the world leader in developing new
comprehensive surgical procedures to treat the complex bone deformities that occur in MHE patients. His landmark contributions on the
treatment of the hip and forearm in MHE have significantly changed the function of many children and adults with this condition. He
speaks, writes, reads and lectures in six different languages. Dr. Paley is married to Jennifer and has four children.
Dr. Paley was the founder and first president of the Limb Lengthening and Reconstruction Society of North America in 1989, and one of
the founders of ASAMI International. He was recently elected the President of the International Limb Lengthening and Reconstruction
Society whose next meeting he will organize in Miami in 2015. He is the recipient of numerous local, regional, national and international
awards both from orthopedic and non-orthopedic groups. He was awarded a Gubernatorial Citation by the State of Maryland for his
humanitarian work and was voted Health Professional of the Year by the Palm Beach Chamber of Commerce. He has been made an
honorary member of 8 National Societies around the world. Most recently he was honored as a Physician Hero by the Palm Beach
Medical Society. He set up the Paley Foundation which has been recognized for its clinical and educational mission work around the
world.
University of Toronto graduating in 1979. After a surgical internship at Johns Hopkins Hospital in Baltimore, he completed his
Orthopedic Residency and FRCSC at the University of Toronto in 1985. He did a fellowship in hand and trauma surgery at Sunnybrook
Hospital in Toronto, another fellowship in pediatric orthopedics at the Hospital for Sick Children in Toronto and a seven month travelling
fellowship to Russia and Italy to study with Ilizarov, Debastiani, Monticelli and Spinelli, and Cattaneo and Catagni. In 1987 he
introduced the Ilizarov method to Canada and the United States. Dr. Paley started his practice at the University of Maryland in 1987 and
became a full professor by the age of 39. He left the University in 2001 to Head the newly constructed Rubin Institute of Advanced
Orthopedics at Sinai Hospital in Baltimore. In 2009, he moved to West Palm Beach, Florida where he currently is the director of the Paley
Advanced Limb Lengthening Institute, on the campus of St. Mary’s Medical Center. He holds an academic position as adjunct Professor at
the University of Toronto and is on the faculty of the Hospital for Sick Children since 2010. Dr. Paley also has an appointment as
Professor, University of Vermont School of Medicine since 2011. At the Paley Institute he supervises a fellowship program for US and
International Orthopedic surgeons.
Dr. Paley is best known for his landmark research in the field of limb lengthening and deformity correction. His 800 page textbook
Principles of Deformity Correction is considered the Bible of deformity correction surgery. It was first published in 2001 and has been
republished in 2005 by Springer. Dr. Paley has also published 4 other books. He is also the author of 47 book chapters, 129 peer
reviewed journal articles, and 54 video productions. He has presented over 1000 lectures at International Orthopaedic Society
conferences and over 900 lectures at North American Society conferences. He has served on The MHE Research Foundation Scientific and
Medical Advisory Board since its inception and presented lectures on all aspects of MHE treatment for both children and adults. He has
also served as as speaker and Orthopaedic Chair during the MHE Research conferences. He is the world leader in developing new
comprehensive surgical procedures to treat the complex bone deformities that occur in MHE patients. His landmark contributions on the
treatment of the hip and forearm in MHE have significantly changed the function of many children and adults with this condition. He
speaks, writes, reads and lectures in six different languages. Dr. Paley is married to Jennifer and has four children.
Dr. Paley was the founder and first president of the Limb Lengthening and Reconstruction Society of North America in 1989, and one of
the founders of ASAMI International. He was recently elected the President of the International Limb Lengthening and Reconstruction
Society whose next meeting he will organize in Miami in 2015. He is the recipient of numerous local, regional, national and international
awards both from orthopedic and non-orthopedic groups. He was awarded a Gubernatorial Citation by the State of Maryland for his
humanitarian work and was voted Health Professional of the Year by the Palm Beach Chamber of Commerce. He has been made an
honorary member of 8 National Societies around the world. Most recently he was honored as a Physician Hero by the Palm Beach
Medical Society. He set up the Paley Foundation which has been recognized for its clinical and educational mission work around the
world.
Dror Paley, MD, FRCSC
Director Paley Advanced Limb Lengthening Institute
Director Paley Advanced Limb Lengthening Institute
| To view FUNTASIA 2007 click here |
| To view FUNTASIA 2009 click here |
| The MHE Research Foundation would like to Thank all the companies and families for supporting this event. |
| To view FUNTASIA 2011 click here |
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Click here to verify.# HON Conduct 282463 and is the patient support link on the US Government Genetics Home Reference (http://ghr.nlm.nih.gov)
website, also linked for Patient Information on The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences a free online service providing access to the very best Web resources for education and research located in the UK
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The MHE Research Foundation is proud to be an affiliate of the Society For Glycobiology
Dear Dr. Paley,
I thought I would take the liberty of taking a different approach in writing your testimonial. I have been blessed with the opportunity to
first hand see the many sides of how you have changed the lives for so many children, adults and families around the world. I need not
tell you my son Robert suffers from (MHE a rare bone disease).
As you know our family was simply handed two paragraphs describing MHE taken out of a text book by an orthopedic surgeon when
Robert was diagnosed more than 20 years ago and told there is NO treatment, your son will require many orthopedic surgeries that I
simply cannot perform. We were given no direction; there are simply no words to describe all we were facing, the feeling of helplessness
and the pain that comes along with it.
Waves of emotion came crashing down on our family. I felt the weight of the world had been placed on my shoulders. How on earth
would we deal! How could we locate the medical care Robert needed in order for him to have the life every child deserves? How would his
future adult life be affected? Would he be able to achieve all the hopes and dreams all young people have? Years of struggling to locate
orthopedic care Robert required and the educational information I felt I needed as a parent, my life changed!
It was a matter of sink or swim and I was going to swim no matter what and whatever sacrifices I needed to make. Sitting at my kitchen
table I envisioned an organization not simply a parent support group but a foundation, (MHE Research Foundation) comprised of
orthopedic professionals, researchers and families, changing the lives of people affected by MHE. I began pulling every publication I could
find from medical journals. Hour after hour, day after day, month after month I read and studied. Until I felt educated enough to
approach and speak with professionals like yourself.
When I contacted you it was not simply for medical care my son required, I wanted so much more! I wanted educational information
written that could be provided to parents as well. I wanted a book! I wanted movement without hesitation! I wanted your time and got it!
You got to work and wrote a chapter on the lower limb and forearm. Education is also simply not a matter of educating parents, but as
you readily know, it’s a matter of taking your knowledge and educating other orthopedic surgeons. Time and time again you continue to
share your knowledge, not simply within the United States but around the world, not simply for MHE but countless rare orthopedic
conditions.
There are times in one’s life when you have a chance to reflect on how far we have come, one of these moments recently came for me
sitting watching you give a presentation on MHE limb lengthening at the first ever surgical session devoted entirely to MHE Dec of 2008
during the International Pediatric Orthopedic Symposium. I approached you concerning doing educational video, not only were you
willing, you were excited about this prospect. Working together educational videos on MHE located on the foundations website and host
of rare orthopedic conditions, located on your website.
While attending the symposium I spotted you sitting speaking with parents who’s little girl needed your care and attention. You were
drawing pictures showing how you were going to fix their daughters arm. At times of families clear distress you are able to envision a
better future for a child’s life that families at these times cannot envision for themselves. You are a three dimensional visionary in every
sense of the word, no detail to small, no issue over encompassing concerning the orthopedic care required.
You embody all that medicine can be and should be! All the while never forgetting there is a story behind each family’s hopes and dreams
they have for their children, a face behind each name. You are a man with vision, A MAN ON A MISSION! Speaking on behalf of the MHE
Research Foundation and as a parent I am proud to have become just a small part of this movement.
The Connection Corner Guide book to MHE is dedicated to all people affected by MHE around the world. No family should need to face
this disease and all the challenges that come along with it alone. No Physician should need to sit face to face with a family and not have
the opportunity to provide a family the supportive educational information they require and you have been and continue to do your part
in correcting this.
On a closing note my son Robert is 22 and has had bilateral hip osteotomies, limb lengthening and a total of 16 different areas of his body
that required surgical intervention and we are not done. This past Jan I brought Robert to you and asked you please locate the problem in
his hip/femur and knee that had been causing Robert so much pain for the past 15 years, pain management was not working and all the
past surgeries other surgeons preformed had not addressed these issues. The look in your eyes, our family knew you would find the
answer and did! The time you spent with Robert speaking with him and not at him, asking questions and your physical exam. The
surgery you did this May Robert worked, you nailed it! Our family had almost given up hope. Robert is a very good student and now sees
a bright future for himself. I know he will now achieve the goals he has set for himself . My prayers as his mother have been answered
many times over and will continue to be.
Over 15 years later the MHE Research Foundation is now the world’s largest MHE organization and leading the way in educational
information in all areas, research being conducted globally and the future does look brighter than I ever could have dreamed possible so
many years ago.
It does take a village in every sense of the word and Dr. Paley you are certainly a large part of our village!!!
With profound gratitude I thank you and look forward to our continuing efforts on behalf of all families around the world.
Sincerely
Sarah Ziegler
I thought I would take the liberty of taking a different approach in writing your testimonial. I have been blessed with the opportunity to
first hand see the many sides of how you have changed the lives for so many children, adults and families around the world. I need not
tell you my son Robert suffers from (MHE a rare bone disease).
As you know our family was simply handed two paragraphs describing MHE taken out of a text book by an orthopedic surgeon when
Robert was diagnosed more than 20 years ago and told there is NO treatment, your son will require many orthopedic surgeries that I
simply cannot perform. We were given no direction; there are simply no words to describe all we were facing, the feeling of helplessness
and the pain that comes along with it.
Waves of emotion came crashing down on our family. I felt the weight of the world had been placed on my shoulders. How on earth
would we deal! How could we locate the medical care Robert needed in order for him to have the life every child deserves? How would his
future adult life be affected? Would he be able to achieve all the hopes and dreams all young people have? Years of struggling to locate
orthopedic care Robert required and the educational information I felt I needed as a parent, my life changed!
It was a matter of sink or swim and I was going to swim no matter what and whatever sacrifices I needed to make. Sitting at my kitchen
table I envisioned an organization not simply a parent support group but a foundation, (MHE Research Foundation) comprised of
orthopedic professionals, researchers and families, changing the lives of people affected by MHE. I began pulling every publication I could
find from medical journals. Hour after hour, day after day, month after month I read and studied. Until I felt educated enough to
approach and speak with professionals like yourself.
When I contacted you it was not simply for medical care my son required, I wanted so much more! I wanted educational information
written that could be provided to parents as well. I wanted a book! I wanted movement without hesitation! I wanted your time and got it!
You got to work and wrote a chapter on the lower limb and forearm. Education is also simply not a matter of educating parents, but as
you readily know, it’s a matter of taking your knowledge and educating other orthopedic surgeons. Time and time again you continue to
share your knowledge, not simply within the United States but around the world, not simply for MHE but countless rare orthopedic
conditions.
There are times in one’s life when you have a chance to reflect on how far we have come, one of these moments recently came for me
sitting watching you give a presentation on MHE limb lengthening at the first ever surgical session devoted entirely to MHE Dec of 2008
during the International Pediatric Orthopedic Symposium. I approached you concerning doing educational video, not only were you
willing, you were excited about this prospect. Working together educational videos on MHE located on the foundations website and host
of rare orthopedic conditions, located on your website.
While attending the symposium I spotted you sitting speaking with parents who’s little girl needed your care and attention. You were
drawing pictures showing how you were going to fix their daughters arm. At times of families clear distress you are able to envision a
better future for a child’s life that families at these times cannot envision for themselves. You are a three dimensional visionary in every
sense of the word, no detail to small, no issue over encompassing concerning the orthopedic care required.
You embody all that medicine can be and should be! All the while never forgetting there is a story behind each family’s hopes and dreams
they have for their children, a face behind each name. You are a man with vision, A MAN ON A MISSION! Speaking on behalf of the MHE
Research Foundation and as a parent I am proud to have become just a small part of this movement.
The Connection Corner Guide book to MHE is dedicated to all people affected by MHE around the world. No family should need to face
this disease and all the challenges that come along with it alone. No Physician should need to sit face to face with a family and not have
the opportunity to provide a family the supportive educational information they require and you have been and continue to do your part
in correcting this.
On a closing note my son Robert is 22 and has had bilateral hip osteotomies, limb lengthening and a total of 16 different areas of his body
that required surgical intervention and we are not done. This past Jan I brought Robert to you and asked you please locate the problem in
his hip/femur and knee that had been causing Robert so much pain for the past 15 years, pain management was not working and all the
past surgeries other surgeons preformed had not addressed these issues. The look in your eyes, our family knew you would find the
answer and did! The time you spent with Robert speaking with him and not at him, asking questions and your physical exam. The
surgery you did this May Robert worked, you nailed it! Our family had almost given up hope. Robert is a very good student and now sees
a bright future for himself. I know he will now achieve the goals he has set for himself . My prayers as his mother have been answered
many times over and will continue to be.
Over 15 years later the MHE Research Foundation is now the world’s largest MHE organization and leading the way in educational
information in all areas, research being conducted globally and the future does look brighter than I ever could have dreamed possible so
many years ago.
It does take a village in every sense of the word and Dr. Paley you are certainly a large part of our village!!!
With profound gratitude I thank you and look forward to our continuing efforts on behalf of all families around the world.
Sincerely
Sarah Ziegler
